Section 4. Survey Data#

Survey data refers to informational data gathered through a sample of the population. This data can cover a wide variety of topics including demographics, activities, behaviors, and opinions. Surveys can be completed by the individual unaided, or through a more formal interview.

Health Equity and Survey Data

  • Survey data is a uniquely powerful tool for understanding trends and patterns across different populations. This can lead to greater awareness in health status, access, and more. Survey data has proven to be a key asset in informing a wide variety of research and health policies.
  • Some of the key health equity concerns around survey data stem from survey design, participant access, and sampling bias.

Common Types of Survey Data#

The table below describes common types of survey media, questions and sampling methods.

Health Equity Considerations#

Users of survey data should be aware of the design features of the data they are using. Below we review some of the common challenges in survey design and execution which may introduce potential biases.

Challenge

Challenge Description

Heath Equity Example

Recommended Best Practice

Privacy and Anonymity

The primary concern here is balancing privacy and accuracy. On anonymous surveys, respondents may be more likely to be candid and truthful. However, when surveys are not anonymous, respondents may be less likely to respond as they want to protect personal information and opinions. With less identifiable features, like demographics, it can be difficult to ensure there is a representative sample. The challenge lies in finding the right balance, and it will depend on a case-to-case basis.

CC is a researcher studying the opinions and experiences of LGBT+ youth on bullying. They do a non-probability sample of after-school programs affiliated with a non-profit. After reviewing the results, CC finds that almost all of the students completed the survey by putting in the name of their after-school program which may lead to being able to identify participants’ locations.

Review survey collection methodology. Ensure you understand how data were collected in regards to privacy and the potential impact of anonymity on survey responses. If survey data does not contain demographic information, you may be unable to confirm a representative sample and should communicate this limitation to consumers of your analysis results.

Language and Literacy

Several issues may occur with surveys and language and literacy. Firstly, respondents may not be familiar with the language or terminologies used or, they may have reading difficulties. It is also important to not sway respondents in one way or another with biased language.

DJ is a researcher studying disease outbreaks in migrant worker groups. DJ makes a survey available in English and Spanish. However, after handing out the survey at various locations, DJ finds that many workers are not able to understand the scientific names of the diseases. Thus, the survey had to be retranslated to a more casual tone to gain more participants.

Review survey questions to assess potential impact of language difficulties and the impact they may have on your particular analysis. Review survey collection methodology to determine the approach to participants with language or literacy limitations.

Technological Access

If surveys exist only online, there could be access challenges. Additionally, device type should be considered, and ensure that surveys work on a variety of mobile devices and operating systems.

MO pays for an iOS developer to build a simple survey application, trying to gather information for heart disease patients. However, because the app only works for Apple users, MO is unable to gather data from patients who have Android or other devices.

Ensure a clear understanding of how the data collected and what technical constraints could have affected responses. Review survey collection methodology to determine the approach to minimizing barriers to access. If barriers were present (eg must use a mobile device or particular platform), consider how these barriers may correlate with your topic of interest.

Cultural Norms and Values

The concerns with cultural norms and values in surveys is complex. Primarily, it is important to consider whether a question is appropriate to ask. Different cultures may have different expectations as to what and how certain topics are discussed. These could be issues around sexuality, gender and gender roles, food, religion, and more. Additionally, if a survey must be translated, special care should be given to not introduce additional biases, and ensure the translation is accurate and culturally sensitive.

MU surveys illicit substance use among Asian Americans. Because the survey has potentially identifiable information in it, MU is finding it difficult to gather any information from some of the participants, as they are uncomfortable sharing information with an unknown party.

Review the data collection methodology and consider how cultural norms may have affected the responses of study participants, particularly those in underrepresented groups. If these norms relate to your intended area of study, this limitation should be communicated to consumers of your analysis.

Sampling Bias (especially in non-Probability Sampling)

This is a common concern in any survey. It occurs when the survey population is not representative, and certain groups or individuals are more likely to be represented over others.

AT is a researcher investigating hand-washing habits in restaurant workers. However, AT only sends the surveys to restaurants with lower health department ratings, thus potentially lowering the response rate.

Assess the representativeness of the survey population relative to the target population of interest. Where appropriate, perform weighting as per Unit 4 to mitigate this imbalance.

Case Study Example#

Case study is for illustrative purposes and does not represent a specific study from the literature.

Scenario: YG is a researcher wishing to understand the prevalence of diabetes and related lifestyle and family history factors in rural communities.

Data Source: YG performs a phone survey with lifestyle, family history, and dietary questions, along with laboratory data from a participating research hospital.

Analytic Method: The analytic method uses primarily descriptive statistics.

Results: YG was able to identify lifestyle and family history prevalence trends related to diabetes in rural settings.

Health Equity Considerations:

  • Common factors that impact Health Equity in surveys are data availability and willingness of participants to participate in surveys. The reasons for this could vary from the local culture of the region being surveyed (i.e. lack of desire to share personal information for research) or even socioeconomic status of the participants (i.e. participants make work long hours or in the evenings when the phone surveys are performed).

  • Other issues to factor in include response bias, where participants respond to what they think the survey takers want to hear versus the actual answers.

  • Using a statistical method such as raking, YG may be able to account for gaps in the data by adjusting the weights for each data point so it the demographics align with the population of that region.

Considerations for Project Planning

  • Are your survey responses likely to have been affected by issues of language and literacy, cultural norms, technological access, or privacy?
  • What strategies do you plan to use to mitigate these concerns?
  • Do you have concerns regarding sampling bias and how do you plan to address?

Resources#